Rare Disease Meetings – RARE 2025

Held every two years, this key event on rare diseases brings together public policymakers, healthcare professionals, researchers, patient advocates, and industry leaders. Under the theme “Screening, Diagnosis and Treatments: New Tools and New Hope,” the congress offers a space for reflection on scientific progress, therapeutic innovation, and organizational solutions across the patient journey. A unique opportunity to advance research and work collectively toward a more equitable and efficient healthcare system.