congress program

Location : Washington

Language : ENG

Start : 2025-02-24

End : 2025-02-26

https://everylifefoundation.org/rare-advocates/rare-disease-week/

Specialities : Others

Rare Disease Week on Capitol Hill empowers and inspires hundreds of advocates each year. Rare Disease Legislative Advocates (RDLA), a program of the EveryLife Foundation for Rare Diseases, brings together hundreds of rare disease individuals, family members, caregivers, and advocates from across the country to make their voices heard by their Members of Congress.

Participants are educated on policy proposals impacting the rare disease community and provide opportunities to advocate for policy changes directly to their Members of Congress.

All videos of the conference ( 0 video )

Suggest a video

22nd Global Summit on Nursing Education and Healthcare

Date : 2026-08-03
208
0

2ᵉ édition annuelle d’EVIDENCE 360 : Sommet RWE, Prix et Accès au Marché – Édition USA

Date : 2026-06-08
121
0

2ᵉ Sommet Annuel EuroPotent 360 (Conférence HPAPI en Europe en 2026)

Date : 2026-05-20
131
0

Conférence sur les Données de Vie Réelle au Royaume-Uni en 2026

Date : 2026-03-16
144
0

1st international Higher Education Conference

Date : 2026-02-03
1347
0